Soccer, Swimming, Saphris, and Summer!

Late afternoon summer sky.
Things are looking up for me since my hospitalization last month. I've been back to work for almost a month, and I'm enjoying my days both at work and outside of work. I started playing soccer again, after a ten year hiatus, and I'm enjoying it tremendously. I look forward to the once-a-week game all week, and it inspires me to exercise every day.

Taking less lithium, as my psychiatrist has directed me to do, makes it much easier to play soccer, and also to stay hydrated. I started taking Seroquel in the hospital to stop my mania. I've taken it before, and it caused a lot of weight gain. However, this time, I snacked on low calorie foods whenever I had the munchies and ended up losing 7 pounds also probably, in part, to playing soccer again.

Last week, when I went to see my psychiatrist, she suggested that I replace Seroquel with Saphris. The last time I tried Saphris, I was depressed, and I felt that it made my depression worse. However, I wasn't taking Lamictal, at the time, which I am now. So, I started Saphris about a week ago, and I feel great. Last night, I played better soccer than I've played so far this season, and I felt more coordinated. Also, I'm more alert and have not needed as much sleep as I did when I took Seroquel. I'm back to sleeping 7 or 8 hours instead of my usual 10 hours when I was taking Seroquel. I've heard that Saphris is a "wonder drug" for some people, and I'm hoping that's the case for me.

Every year, I look forward to the beginning of swimming season, and this year was no different. I had a great time swimming at my condo pool for the first time this year. My conditioning for soccer consists of walking in hilly places, swimming, and taking a spinning class. I'm still going to the YMCA for swimming workouts, but my condo pool is so nice for a peaceful dip after a long, hot day, and sometimes, if I'm inspired, I swim some extra laps. This happens more often as the water warms up. I absolutely love to swim in a warm pool with the sun shining down on me!

It's definitely summer in Kentucky. The temperatures have already reached the mid nineties. I don't have any big plans for the season. It's hard to save money for a vacation, as I'm collecting Social Security Disability, and only allowed to work part time. So, I'm working on being patient and appreciating the simple things in life, such as spending time with friends and family, and enjoying the sunny weather and lazier days.

Luckily, in my town, there are lots of  inexpensive things to do - art festivals, neighborhood fairs, free and cheap music, etc. I have a lot to be thankful and grateful for, and I'm happy that I'm getting back on track again. Someday, I hope that I'll be stable enough to start working full time again. But, for now, I'm going to take advantage of the extra time that I have each day, and work on strengthening myself, both mentally and physically.

A Break from Reality

In March, I was having trouble with my boyfriend. We were arguing a lot about what I considered to be very small things. Then, after a sudden betrayal of my trust, I broke up with him and didn't look back. Also, at work, I was facing some moderate stress. In addition, the season was changing from winter to spring. I often become hypomanic when the days grow longer and the temperatures start climbing. I felt like I was speeding up, but I was still sleeping, though, as I now recollect, not very much. I had made a promise to my psychiatrist that I would call her if I started missing sleep. I wasn't exactly missing sleep, but I was racing through my days and not sleeping as many hours as usual. I had things to be upset about, but I felt good anyway. Maybe it would be better to describe it as energized. I was enjoying the sunny weather, and I felt productive - likely more than I really was. It's hard to describe this time accurately, because I was moving through it in a blur. It was almost dreamlike. As I look back now, I am sure I was hypomanic.

The day after I broke up with my boyfriend, the owner of my company, as well as the president, came to ask me questions about my breakup, my work, and my mood changes. They said they had noticed that I was acting different (hypomanic). They had seen it before, a couple of years past. At the end of our discussion, they told me that they would be giving me paid leave for as long as I needed it to "get healthy". I knew that I was hypomanic, but I was still sleeping (for the most part). My parents had plans to go visit my sister in Connecticut the next day. It seemed like the perfect opportunity to see my sister and nephews and rest. I felt like all I needed was rest, and then my hypomania would subside. So, I left, with my parents, for Connecticut, the next day.

As it turned out, when I got to Connecticut, I didn't rest. I barely slept at all. I woke up before everyone else, at the crack of dawn, and would quickly put on my clothes and start walking to the town center and all around the town. I would come back around noon and meet my family for lunch. They left the back door open for me. I think I probably walked at least 5 miles each day and some days I think I walked about 7 miles. I would describe my walking as roaming and exploring.

Everyone in my sister's town seemed extremely friendly, and they greeted me warmly. It's a small town, so I'm sure that many people knew that I didn't live there. The highlight of my time there, was the first morning, when my sister and I went for a walk on a beautiful beach near her house, but I spent most of my walking time by myself. I would first walk to Starbucks, the earliest place to open, and I would talk to the people there who were getting coffee before work. Everyone in the town seemed so kind. When I looked at their expressions, I felt like they were sending me secret messages. I felt really welcomed, loved, and taken care of. It was beautiful, but I know I was imagining a lot of what was going on.

We went to the Easter service at my sister's church the day before I was supposed to fly home. While I was in church, my mother, who was sitting behind me, grabbed my purse and moved it. I was extremely irritated by this, as I didn't understand why she had disturbed me. So, in the beginning of the service, I reprimanded her, not quite yelling, but speaking to her loudly and harshly. I then quietly walked out of the church and started walking around town again. I went back to Starbucks, and, surprisingly to me, because it was Easter Sunday, it was crowded. After I drank a couple of iced herbal teas, I began wandering again.

After church, my parents called me. I agreed to walk back to my sister's house and then we went to a special Easter Sunday Brunch at a nice restaurant. After the church incident, I was on edge whenever I had to deal with my mother. We were supposed to fly home the next day. I was becoming increasingly agitated and upset. A couple of hours before we had to fly home I realized that I was going to lose it on the plane if I had to fly back home. I asked to go to a hospital. A few minutes later, my sister drove me to Yale-New Haven Psychiatric Hospital where I was admitted because of my manic behavior and my delusions of people psychically communicating with me.

When I arrived in the psychiatric emergency room, it was discovered that although my lithium level was low, I had lithium toxicity. The reason my lithium level was low, is that the lithium toxicity was causing extreme thirst, and I was drinking huge amounts of  water to quench it. Because of this, lithium was being washed out of my system. So, I was put on water restriction for 24 hours and when my lithium level was taken again, it was toxic, because I hadn't been allowed to drink nearly as much water as I had been drinking before.

The psychiatrist in the emergency room explained that I would have to take less lithium, or even no lithium, and add an antipsychotic medication to prevent further episodes of mania. When I got out of the emergency room, where I stayed for three days, I was admitted to the psychiatric hospital, where I stayed for seven days. The psychiatrist in the hospital decided to lower my lithium dose from 1800 mg. to 1350 mg. He then ramped me up to 400 mg. of Seroquel and kept me on 200 mg. of Lamictal. I felt better and better each day.

When I was in the Yale-New Haven Psychiatric Hospital, I received the best care that I have ever received in a mental hospital. It was such a relief to be listened to and taken seriously as a human being. I had been complaining of my extreme thirst for about two years, including another time when I was hospitalized in Kentucky. My complaints were always dismissed, even though I had measured how much I was drinking each day. I told three doctors about this, and I told them I was drinking about eight quarts of water every day, and they just told me that nobody knows how much water an individual needs, so I should just drink when I was thirsty.

When I explained this treatment to a nurse at Yale-New Haven, he became incensed and yelled, "What are they, retarded? Nobody should be drinking eight quarts of water a day. You could have died! Your organs were failing!" All I can say, is that is the difference between mental health care in Kentucky and Connecticut. The only person in Kentucky who noticed my extreme dry mouth and irritated tongue was my dentist, and she considered it to be a problem worth addressing, so she gave me some special mouth spray to use (Biotene). It did help my mouth, but it didn't take away my thirst. I just told her that my doctors had advised me to drink whenever I was thirsty, and I was doing so, but my mouth was always dry anyway. Doctors in Kentucky don't believe you when you say you're drinking eight quarts of water a day, but your mouth is still parched. In Connecticut, it is considered (correctly) to be a medical problem.

I love Kentucky, but if I ever have a serious medical problem again, I'm going to Connecticut for a second opinion. Kentucky is not known for its brainpower. We are among the least educated states in the country. There are many reasons why people choose to live here anyway, but one of them, is that if you are educated, it's much easier to get a job here than places where there is more competition. I've always considered Kentucky to be a backward state, but I have grown used to it, and have had many good experiences here anyway, and have made many good friends whose companionship I treasure, but I often feel that if I hadn't been stricken with a severe and persistent mental illness, I would have left right after high school and never come back.

Severe Manic Phase

I've been hospitalized for mania three times in the past ten years, the last time in 2010. This post is an account of a mania that occurred in 2002. I chose to write about this manic phase because I happened to have my camera with me a lot, and I took pictures that may help you to understand what I was going through. 

In this picture, I'm standing on a beach of  Lake Michigan in Chicago. I had recently started a new job and was hanging out with my ex-boyfriend a lot (didn't make much sense). Anyway, he was gearing up for a really busy time at work and wanted to visit Chicago before he became swamped. 
We decided to go to Chicago for the day and drive back late at night. It was a ten hour drive round trip. I know that lack of sleep can trigger mania in me, so I always try to make sleep a priority. For this reason, I was afraid to make the trip since it seemed unlikely that I'd get enough sleep, but my ex-boyfriend said, "Don't worry, you can sleep in the car on the way back," and I stupidly agreed to go. This picture was taken shortly after we got to Chicago, and I was feeling very happy and even-keeled.

I ended up staying up all night in Chicago and didn't sleep as my ex-boyfriend drove back to Louisville. When I got home, instead of sleeping, I decided to drive to my favorite part of town, park, and wander around. I didn't have any plans to go anywhere specific or meet anyone. I just walked around talking to strangers and taking pictures.

The people below are a very nice couple I met and chatted with at a coffee shop. I'm a friendly person, and I often make eye contact and smile at strangers, and even exchange pleasantries when appropriate. This was beyond that. I was engaging people in long conversations. I'm not sure what they thought. I'm lucky that people in Louisville are polite compared to many of the other places I've been.



After I left the coffee shop, I hopped on a trolley where I spoke with these young men.
 

When I got off the trolley, I met this man on the sidewalk.



I had quite a long conversation with these two guys, although I don't remember what we were talking about. The one with the beret asked me out for ribs. I got in his camouflage truck and he drove me about 30 miles from my parked car. We had fun eating ribs and drinking beer - by then I was fully manic and didn't take the "no drinking" advice from my doctor seriously. I don't recall any wild drinking, but I remember having a couple of strong microbrews.

After the ribs and beer, he invited me to his apartment and off we drove. When we got there, he put on some 80's music and started dancing. As I was taking everything in, I noticed he had a lot of knives on display. All of a sudden, I felt uncomfortable and realized that I wanted to leave. I asked him to take me back to my car and he did. I'm really lucky that he was a nice guy. 

You may notice that, in this picture, I'm still wearing the outfit that I was wearing in Chicago. I tend to wear the same clothes for days when I'm manic.



I thought this young girl selling candy was really cute.



The next day, I returned to the same neighborhood for more roaming. I was having some religious delusions that I can't remember very well anymore. For reasons that made sense at the time, I decided to walk into my church. The door was open and I found a few friends there and had this picture taken with one of them. I was wearing a t-shirt that says, "City of Louisville - 1778." I remember that it meant something special to me at the time, besides it being the year that Louisville was founded. It seems like everything becomes an important symbol when I'm manic.




After I left the church, I walked to a park with a large fountain. I left my purse on the ground and jumped into the water, completely immersing myself and imagining some kind of self baptism. I got out sopping wet and wandered over to a picnic area where I started talking to random people and families.

The family below was really nice. Reflecting on the situation now, I'm sure they assumed that I was mentally ill, homeless, or both. They were really soft spoken and gentle and offered me food and drinks. I stayed with them for a while.




When I left the park, I walked back to my car, which was parked several miles away, and drove back home where I made some potato salad to take to a party. I'd been up and active for many hours, but I still had energy at the party and remember having a good time.

I don't remember how I landed in the hospital, but I did. I was in for a week. I almost lost my job, since I had just started a few weeks earlier, but I talked them into giving me a chance to work, and I ended up working there for two years until I completed my master's degree and began teaching.

I asked my mother if she could remember how I ended up in the hospital in 2002. She said, "No, it all runs together for me." Hearing her say that made me realize, yet again, how hard it can be for family members to deal with the instability that bipolar disorder can bring, and gives me another, in a long list of reasons, to keep my commitment to staying well.

Although I don't remember how I ended up in the hospital, I can tell you that most of my manias have degenerated into hallucinations, delusions, paranoia, irritability, and uncharacteristically aggressive behavior. For an account of that, see Relationships. I'm sure the lack of sleep and drinking alcohol contributed to this mania, and I'm sure I missed some doses of medication during the days I've described.

Intelligence

When I was nine years old, I was identified as being a gifted learner, and I entered a special enrichment program at my public elementary school in Georgia. It was called TAG (talented and gifted). About six of us were pulled out of our regular fourth grade classes and treated to classes on various subjects. I enjoyed learning about optical illusions, jazz, ancient Egypt, and astronomy, among many other things. I vividly remember both of my teachers, who worked as a team to teach the classes. One was male and one was female. Last year, I looked up my female teacher on Facebook and found her. It has been great to catch up with her after all of these years, and also to let her know that she was one of my favorite teachers.

There's a stigma to having a high intelligence, and discussing one's own intelligence is awkward in a similar way to discussing one's own mental illness. I was diagnosed with a high IQ ten years before I was diagnosed with Bipolar Disorder I. Perhaps already understanding that I marched to the beat of a different drummer made it easier for me to accept the fact that I have a mental illness.

Now I'm a member of Mensa, "The International High IQ Society". I joined in 2000, and it wasn't until this year that I disclosed my bipolar disorder to anyone in my local chapter. To my surprise, the day I made my announcement by sharing this blog in our chapter's Facebook group, a woman who's only three years older than I am, let me know that she has Bipolar Disorder II, and commented, "I'm also on the L&L regimen". It's great to know that I'm not alone in being exceptional in ways that society views as both positive and negative. It's funny how high intelligence is considered to be a good thing, but you're never supposed to mention that you possess the gift. Since I made my disclosure about having bipolar disorder, I've learned that in addition to one other member of my Mensa chapter having bipolar disorder, there's one person in my chapter with dyslexia, and another with Asperger's Syndrome. It is clear that having a high IQ does not ward off life's disorders!

Sometimes people ask me if my intelligence has helped me deal with my bipolar disorder. Although I have flashes of intelligence during mania, hypomania, and even depression, I feel that I'm at my most intelligent when my mood is stabilized by my medication. When I'm stable, I'm able to be rational and logical, and it's easy for me to understand that I have to do many things in order to be at my best: eat healthy food, exercise, reduce stress, follow my routines, get regular sleep, etc.-- and I do these things. So, I don't believe that intelligence means that I can conquer bipolar disorder, but I do believe that intelligence makes it easier for me to participate in my treatment by choosing the right psychiatrist, medications, therapist, and support group for me, and realizing that I have to adapt my lifestyle in many ways in order to save myself.

Everything's Okay!

 
At this moment in time, I feel like I've covered all of the really serious aspects of dealing with bipolar disorder in this blog. If something else comes up, I'll be sure to address it, but for now, I'm happy to announce that everything is going well for me. This is the first year that I spent time gearing up to prevent my not unusual fall/winter depression. I'm definitely going to continue trying to prevent seasonal mood changes, but this year, my preparations seem to have been overdone. This winter has been unusually mild, making it easier for me to get out and be active. I haven't felt any hesitation about going to the grocery store, running to the bank, or completing any of the other errands required to keep my life running smoothly. I've enjoyed all of the winter holidays so far, and am now looking forward to Valentine's Day.

Lately I've been walking with a few different friends. I've enjoyed the exercise as well as their company. We usually walk for an hour or two, so we have lots of time to talk. It's very therapeutic, and a great way to get exercise and relax in our hectic, modern world. In the past, it's been harder for me to find walking partners. I'm really glad that more of my friends are interested in walking now...maybe it's because we're getting older (?).

For the past few months, I've been focusing on preparing healthier meals and eating a more wholesome diet in general. I've long been frustrated by thinking of all of the chemicals I have to ingest, in the form of bipolar medications, that seem to throw my chemistry out of balance with the result being unpleasant side effects. While I have always understood the value of eating whole, unprocessed foods, I'm trying to become more vigilant about eating a cleaner diet with fewer added chemicals, thus avoiding the negative health effects of eating too much processed food, because I'm already tired enough of dealing with the side effects from medication. I believe that our bodies can only handle so many foreign chemicals! 

I can also report that I've been sleeping well and waking up easily. I've been enjoying spending time at home, at work, out in the community, and with my friends. In the fall, I joined two interesting community organizations. One is called Forge, which is a "community for innovators". So far the meetings have been very interesting. I met one entrepreneur who was looking to hire someone, and I told a friend with the right qualifications about the position, and she got the job! She told me that she'll take me out for dinner when she gets her first paycheck. The other organization I've been meeting with is called Let Them Tweet Cake , a group for women who are interested in social media--right up my alley. I'm really glad that I found these organizations, because both of them seem to be a really good fit for me.

So things are humming right along. I know I'll feel even better come spring and summer, but I'll also have to be watching myself and making sure I don't get too carried away. It's strange to be so dramatically affected by things both large and small. I guess that's why I was diagnosed with bipolar disorder. I'm happy that I understand my mood conditions, as well as myself, better than I used to. Time and experience have helped me so much in my quest to live a fulfilling life.

Another Winter

Artificial flowers covered with melting snow.
"Spring, summer, and fall fill us with hope; winter alone reminds us of the human condition."
- Mignon McLaughlin


Winter is not my favorite season, and while I've always tried to embrace it, it has consistently given me mixed feelings. When I was a little girl living in Connecticut, I would stay out for the good part of many days making snow angels, sledding, throwing snowballs, and ice skating. I had fun, but I always cursed the resulting iciness and numbness in my toes at the end of each day.

Then there was the time I crashed through some snow-covered ice and landed in a swamp. I was able to climb out, but my snow pants and coat were soaked with muddy water, which really weighed me down. Luckily I was close enough to safely drag myself home on that freezing day.

Sometimes walking through a snowy landscape inspires an appreciation for the silence and the stillness of winter, and sometimes it makes me worry that if I fell and injured myself, I would slowly freeze to death as no one would hear my cries for help.
 
As a child, the beginning of the winter thaw would give me hope as I saw ice melting and water starting to run off the frozen school playground, but I knew I would have to be patient because the gradual warming to more hospitable temperatures would take at least a month, and probably longer, and I would still be stuck outside for every recess until that happened.

Most of my serious depressions have occurred during the fall and winter. This year I seem to be fending off that unpleasant, and often debilitating, condition. I've been keeping up with all of my routines and moving forward, but I still have some of that strange quietness and stillness inside that winter always brings me. Some people love it, but it just makes me feel off balance. I've been reading more, trying to enjoy spending more time indoors, and appreciating the relative warmth of some days, but I really can't wait to jump into a pool on a hot July day.

Oh, The Places You'll Go at Burning Man!


When I watched this video, I both laughed and cried, and I thought that most anyone with bipolar disorder would be able to relate to it. I bought the book the video is based on, Oh, The Places You'll Go, by Dr. Seuss, as soon as I became aware of it, and as a teacher, I used to read it to my students. I've always enjoyed the message, but I really love this interpretation. What do you think? Have you been in any of these places? Burning Man has always fascinated me, and now my desire to go is even stronger!